Cerebral Palsy Research - USA

Research Achievements

Important advances in cerebral palsy research can be achieved with the support of people like you.

Read about some of the recent achievements for cerebral palsy by our friends and colleagues in the U.S. and around the world:

Achievement Outcomes

World’s first Chair of Cerebral Palsy appointed

  • Transformed opinions of health professionals regarding cerebral palsy – no longer thought of as incurable or untreatable
  • Cerebral palsy research now regarded as an area of exciting potential and worthy of investment
  • Secured the best researchers around the world to look for causes of cerebral palsy that
    can be prevented, and one day find a cure.

Over $31M invested in 261 projects in the US and around the world

  • More researchers than ever before are choosing to focus their career’s work on cerebral palsy
  • More researchers = quicker results
  • Cerebral palsy is no longer an area ignored by researchers

Supported and advocated for research on using magnesium sulphate as a preventative treatment for extremely pre-term babies

  • The incidence of cerebral palsy in babies born less than 30 weeks of gestational age can be reduced by 30%
    when magnesium sulphate is administered to a mother just prior to birth.
  • This means magnesium sulphate can help prevent between 35 and 50 premature infants each year in Australia from developing cerebral palsy.
  • Magnesium sulphate is now being used as an intervention in clinical practice.

Supported research into the use of therapeutic hypothermia for babies born full term, who are very sick and are admitted to intensive care shortly after birth

  • Evidence suggests this treatment may stop the development of cerebral palsy in
    1 out of 8-9 of these babies.

Achieved global agreement on where we need to look for answers

Researchers can now focus their efforts on 5 priority areas with the potential for the most impact for CP:

  1. Active Surveillance & Specialised Assessments
  2. CP Registers & Networks
  3. Intervention & Best Practice
  4. Prevention & Cure
  5. Translating Research Into Practice (TRIP)

Hosted 7 international cerebral palsy summits, bringing together the best and brightest minds in the field

  • Researchers can now identify knowledge gaps and define strategies and processes to fast-track breakthroughs in cerebral palsy research.

Created IMPACT for CP (International Multidisciplinary Prevention and Cure Team)

  • We now have an international network of scientists, researchers, clinicians, families, people with CP,
    philanthropists, industry, policymakers and funders supporting and promoting high quality
    cerebral palsy research.

Completed original research that identifies birth defects to be a much more significant cause of cerebral palsy than originally thought

  • New areas for preventive research are now underway.
    Dr Sarah McIntyre is now working on linking data from CP registers with birth defects registers to identify causal pathways to CP

Successfully lobbied the California Institute for Regenerative Medicine

  • Influenced the California Institute for Regenerative Medicine to prioritise CP research projects.

Global promotion of The General Movements Assessment Tool – a new early identification technique

  • Health professionals can now identify cerebral palsy in babies as young as 3 months rather than
    waiting up to 19 months for treatment.

Developing America’s first CP Register

  • Supporting the development of a country-wide CP register for the US.

Carrying out groundbreaking stem cell research for CP, led by Fulbright Scholar, Professor Iona Novak

  • The establishment of Xcellerate an American-Australian Cerebral Palsy Stem Cell Consortium utilising American
    stem cell researchers and Australian cerebral palsy registers.