The Disability Impact Registry

Thu 17 Apr 2025

The Disability Impact Registry

By: Molly Lazarus, Director of Remarkable US

As I have been tracking the news and the posts and asks from the disabled community, it has occurred to me that the chaos of the current administration is providing a buffer for the sometimes slow and sometimes sudden losses that are impacting the disabled community. This scares me. Budgets that are handed down but not allocated, services like Medicaid that are threatened, and budget cuts with little thought to the repercussions all mean that we can’t quite track who is being impacted and how we can help.

I worry each person will feel the impacts differently. We will all know someone affected, but we may not be able to see trends or tap into the greater community to help each other. That is why I have put together this registry. There needs to be a place to learn about these impacts and coalesce support.

Here is my commitment. I will track and anonymously share the impacts, big or small, that our community is dealing with. If there are people that can be directly connected around specific support, I will make those connections.

My hope is that innovators and folks who are looking to build startups and nonprofits in this space will also pay close attention. This will be a place where you can directly see the immediate needs of the disabled community and build for them.

If we can’t count on our government, we must figure out how to count on each other. Outrage only gets us so far.

If you want to help:

Finally, bookmark Accessibility in Action. This is likely not a one-time data collection point but something that is needed over time.

Wed 09 Apr 2025

Purple graphic with bold white text that reads: 'Be Part of the 2025 Remarkable US Accelerator.' Logos for Cerebral Palsy Alliance Research Foundation and Remarkable are displayed at the bottom left. A pink and purple gradient shape decorates the top right corner.

We’re thrilled to announce that applications for the 2025 Remarkable US Accelerator are officially open! If you’re a startup founder or team innovating in disability technology and working toward a future that’s inclusive, accessible, and empowering, this is your opportunity to take your venture to the next level. CPARF’s technology accelerator, Remarkable US, is the […]

Fri 28 Mar 2025

Graphic with a green background and white text that reads: 'Keeping it Real: An Anonymous Story. A series of personal stories that will take you deeper into the lives of people with CP. PART FOUR.' The bottom section is blue with white text that says 'Cerebral Palsy Awareness Month 2025' and includes the Cerebral Palsy Alliance Research Foundation logo.

We recently connected with someone in our community who wanted to share their story anonymously. Check out the part three below. The final part will be available on Friday, March 28.