Our Story

Cerebral Palsy Alliance Research Foundation (CPARF) funds the brightest US researchers to find improved treatments, uncover ways to prevent cerebral palsy, and ultimately discover a cure.

We are the foremost organization in the world that solely focuses on cerebral palsy (CP) research. CP is the most common childhood-onset physical disability in the world and it is one of the most underfunded. We will be the ones to change that. We will be the ones to amplify the science that will reshape what it’s like to live with CP. We will be the ones to find, fund, and support the researchers who will revolutionize prevention and find a cure.

TACKLING A CRUCIAL NEED IN THE US

In the US, CP research is currently trapped in a cycle of chronic underinvestment that stifles innovation. The National Institutes of Health (NIH) only allocates around $28 million to CP research annually, despite CP’s high prevalence and exceptionally high lifelong economic burden. One in 323 babies is diagnosed with CP each year, and related lifetime costs exceed $1.2 million per person, while less common disabilities with lower lifetime costs receive exponentially more NIH funds, leading to more research for them.

WHAT WE FUND

CPARF will change that through strategic funding directed to five research priorities:

• Early detection and early intervention
• Chronic pain
• Technology
• Regenerative medicine
• Genomics

We support the US-based research in these key areas that is the most promising — the studies that are likely to effect the broadest change, the science that’s positioned to make the deepest impact, and the researchers who are closest to achieving their goals.

We have given out grants totaling $37.5 million to date and robust private funding will help us attract the brightest researchers and advance promising science to the critical clinical trial stage.

CP was once thought of as unchangeable, unpreventable, and incurable and we’re changing the way people think.

Your generosity can do even more. When you give to our targeted research programs, you will change lives — and you will change what possible means for cerebral palsy.