Updates and Stories

By Kim Greene Season of Confirmation With his affirmative comment and now wondering if indeed I had a neurological issue, I googled what I knew about my history. I knew that I had been adopted and born eight weeks early and had to be kept in the hospital until I was stable and weighed more […]

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and […]

By Kim Greene Ecclesiastes 3:1 There is a season (a time appointed) for everything and a time for every delight and event or purpose under heaven— Season of Searching A few years ago, I entered a season of searching…searching to answer the WHY my body was responding in ways that others judged as being, “out of shape, needing exercise, uncoordinated, […]

By Aitana and Karina De Costa  We recently connected with Aitana — a spunky nine-year-old girl with cerebral palsy — and her mom, Karina. They each shared their perspective with us, and it’s worth a read. Check out Karina’s story below (You can read Aitana’s story here). Tell us about yourself. For example, how would […]

By Aitana and Karina De Costa  We recently connected with Aitana — a spunky nine-year-old girl with cerebral palsy — and her mom, Karina. They each shared their perspective with us, and it’s worth a read. Check out Aitana’s story below and stay tuned for Karina’s story soon. Tell us about yourself. For example, how […]

By Don Hageman What does it feel like to have cerebral palsy (CP)? Getting asked this growing up and still today, I constantly ponder this question. Though this might seem to be a simple question about a physical disability, it’s a psychological conundrum with no simple answer.  There are many variables, including the fact that […]

By RJ Nealon I often think back to that quick submission loss and tell myself that it was probably the best thing that happened to me and my journey. It forced me to take a deep hard look at myself and converse with my inner self. What do I want? What impact do I want […]

Discover how RJ used Brazilian Jiu-Jitsu to find and harness his personal strengths, and how it became an important part of his relationship with his cerebral palsy.

The second part of this Science Spotlight focuses on the specifics and potential treatment of dystonia for people with cerebral palsy.