Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and cerebral/cortical visual impairment (CVI) , including overlaps, personal experiences, and more. Hosted by CPARF’s Vice President of Education, Jocelyn Cohen, the conversation will feature an expert panel speaking from lived experience and parental perspective:
- Dagbjört Andrésdóttir, lives with both CP and CVI
- Ali Mahady, CP & CVI Parent and CVI Now’s Outreach Manager
- Rachel Bennett, CVI Parent and CVI Now’s Director
- Lacey Smith, CP & CVI Parent and CVI Now’s Community Manager
Recording available soon.
Wed 21 May 2025
Are you ready for STEPtember 2025? We’re officially in double digits — CPARF is celebrating 10 years of funding groundbreaking cerebral palsy research and driving innovation forward. And there’s no better way to mark this milestone than with our biggest, boldest STEPtember yet. Thanks to you, STEPtember has grown into a global movement that powers […]
Thu 15 May 2025
Celebrate Your Birthday with Purpose: Start a Fundraiser That Changes Lives Birthdays are for joy, reflection, and connection — and now, they can help fund groundbreaking research, fuel innovation in assistive technology, and create lasting change for people with cerebral palsy and other disabilities. Celebrate your special day by starting a customized birthday fundraiser to […]