CPARF Joins Forces with CVI Now for Community Event on July 25

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.
Wed 10 Jul 2024

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and  cerebral/cortical visual impairment (CVI) , including overlaps, personal experiences, and more. Hosted by CPARF’s Vice President of Education, Jocelyn Cohen, the conversation will feature an expert panel speaking from lived experience and parental perspective:

  • Dagbjört Andrésdóttir, lives with both CP and CVI
  • Ali Mahady, CP & CVI Parent and CVI Now’s Outreach Manager
  • Rachel Bennett, CVI Parent and CVI Now’s Director
  • Lacey Smith, CP & CVI Parent and CVI Now’s Community Manager

Recording available soon.

Thu 21 May 2026

A smiling young child sits in a supportive wheelchair indoors near large windows with natural light streaming in. The child wears a pink outfit and appears joyful and engaged. Overlaid text reads: “Introducing the Disability Tech Index — A free, searchable database of assistive technology, built by and for the community it serves” alongside the Cerebral Palsy Alliance Research Foundation logo.

Introducing the Disability Tech Index — a free, searchable database of assistive technology, built by and for the community it serves. 

Tue 19 May 2026

A smiling man with a prosthetic leg sits cross-legged on a yoga mat outdoors, meditating in a sleeveless navy athletic outfit. Palm trees and a chain-link fence are visible in the sunny background. Overlaid text reads: “Mental Health Awareness Month — You Are Not Invisible: Mental Health, Disability, and the Care We All Deserve” alongside the Cerebral Palsy Alliance Research Foundation logo.

May is Mental Health Awareness Month — a time to slow down, speak honestly, and remind ourselves that everyone deserves support, to be seen, and to feel whole.