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CPARF Joins Forces with CVI Now for Community Event on July 25

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.
Wed 10 Jul 2024

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and  cerebral/cortical visual impairment (CVI) , including overlaps, personal experiences, and more. Hosted by CPARF’s Vice President of Education, Jocelyn Cohen, the conversation will feature an expert panel speaking from lived experience and parental perspective:

  • Dagbjört Andrésdóttir, lives with both CP and CVI
  • Ali Mahady, CP & CVI Parent and CVI Now’s Outreach Manager
  • Rachel Bennett, CVI Parent and CVI Now’s Director
  • Lacey Smith, CP & CVI Parent and CVI Now’s Community Manager

Recording available soon.

Wed 15 Apr 2026

Press release graphic: "CPARF Receives $100,000 Grant from Ability Central to Expand Access to Affordable Assistive Technology — For Immediate Release." Logos for Cerebral Palsy Alliance Research Foundation and Ability Central appear at the bottom.
CPARF Receives Ability Central Grant

CPARF Receives $100,000 Grant from Ability Central to Expand Access to Affordable Assistive Technology

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Fri 10 Apr 2026

A smiling woman stands outdoors by a pond, holding a book titled “Trent’s Triumph Activity Book,” while standing behind her brother, who is seated in a wheelchair and laughing joyfully. They are on a sunlit path with trees and water in the background. Overlaid text reads: “The Unbreakable Bond: Celebrating National Siblings Day with Trent and Kalli” from the Cerebral Palsy Alliance Research Foundation.
National Siblings Day

National Siblings Day is about more than childhood memories — it’s about the people who show up, advocate, and push us to be our best.

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