CPARF Joins Forces with CVI Now for Community Event on July 25

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.
Wed 10 Jul 2024

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and  cerebral/cortical visual impairment (CVI) , including overlaps, personal experiences, and more. Hosted by CPARF’s Vice President of Education, Jocelyn Cohen, the conversation will feature an expert panel speaking from lived experience and parental perspective:

  • Dagbjört Andrésdóttir, lives with both CP and CVI
  • Ali Mahady, CP & CVI Parent and CVI Now’s Outreach Manager
  • Rachel Bennett, CVI Parent and CVI Now’s Director
  • Lacey Smith, CP & CVI Parent and CVI Now’s Community Manager

Recording available soon.

Thu 17 Apr 2025

The Disability Impact Registry By: Molly Lazarus, Director of Remarkable US As I have been tracking the news and the posts and asks from the disabled community, it has occurred to me that the chaos of the current administration is providing a buffer for the sometimes slow and sometimes sudden losses that are impacting the disabled community. […]

Wed 09 Apr 2025

Purple graphic with bold white text that reads: 'Be Part of the 2025 Remarkable US Accelerator.' Logos for Cerebral Palsy Alliance Research Foundation and Remarkable are displayed at the bottom left. A pink and purple gradient shape decorates the top right corner.

We’re thrilled to announce that applications for the 2025 Remarkable US Accelerator are officially open! If you’re a startup founder or team innovating in disability technology and working toward a future that’s inclusive, accessible, and empowering, this is your opportunity to take your venture to the next level. CPARF’s technology accelerator, Remarkable US, is the […]