The Disability Impact Registry

Thu 17 Apr 2025

The Disability Impact Registry

By: Molly Lazarus, Director of Remarkable US

As I have been tracking the news and the posts and asks from the disabled community, it has occurred to me that the chaos of the current administration is providing a buffer for the sometimes slow and sometimes sudden losses that are impacting the disabled community. This scares me. Budgets that are handed down but not allocated, services like Medicaid that are threatened, and budget cuts with little thought to the repercussions all mean that we can’t quite track who is being impacted and how we can help.

I worry each person will feel the impacts differently. We will all know someone affected, but we may not be able to see trends or tap into the greater community to help each other. That is why I have put together this registry. There needs to be a place to learn about these impacts and coalesce support.

Here is my commitment. I will track and anonymously share the impacts, big or small, that our community is dealing with. If there are people that can be directly connected around specific support, I will make those connections.

My hope is that innovators and folks who are looking to build startups and nonprofits in this space will also pay close attention. This will be a place where you can directly see the immediate needs of the disabled community and build for them.

If we can’t count on our government, we must figure out how to count on each other. Outrage only gets us so far.

If you want to help:

Finally, bookmark Accessibility in Action. This is likely not a one-time data collection point but something that is needed over time.

Wed 21 May 2025

Bold graphic promoting STEPtember 2025. The word “STEPtember” is displayed prominently in large, stylized text on a dark blue background. Below it reads “2025 Challenge is Coming Soon,” framed by green dotted arrow graphics pointing inward. The logo for the Cerebral Palsy Alliance Research Foundation is displayed in the bottom right corner on a bright teal strip.

Are you ready for STEPtember 2025? We’re officially in double digits — CPARF is celebrating 10 years of funding groundbreaking cerebral palsy research and driving innovation forward. And there’s no better way to mark this milestone than with our biggest, boldest STEPtember yet. Thanks to you, STEPtember has grown into a global movement that powers […]

Thu 15 May 2025

Illustration promoting birthday fundraisers for the Cerebral Palsy Alliance Research Foundation. The left side features a green box with the message “Celebrate Your Birthday with Purpose” and the CPARF logo. The background is a cheerful pattern of cakes, balloons, and presents. On the right, a photo shows a joyful group of people, including children and adults, throwing confetti around a birthday cake. The bottom of the photo reads “Happy Birthday!” in playful blue script.

Celebrate Your Birthday with Purpose: Start a Fundraiser That Changes Lives Birthdays are for joy, reflection, and connection — and now, they can help fund groundbreaking research, fuel innovation in assistive technology, and create lasting change for people with cerebral palsy and other disabilities. Celebrate your special day by starting a customized birthday fundraiser to […]