CPARF Joins Forces with CVI Now for Community Event on July 25

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.
Wed 10 Jul 2024

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and  cerebral/cortical visual impairment (CVI) , including overlaps, personal experiences, and more. Hosted by CPARF’s Vice President of Education, Jocelyn Cohen, the conversation will feature an expert panel speaking from lived experience and parental perspective:

  • Dagbjört Andrésdóttir, lives with both CP and CVI
  • Ali Mahady, CP & CVI Parent and CVI Now’s Outreach Manager
  • Rachel Bennett, CVI Parent and CVI Now’s Director
  • Lacey Smith, CP & CVI Parent and CVI Now’s Community Manager

Recording available soon.

Mon 08 Sep 2025

Introducing the 2025 Remarkable US Cohort

We’re proud to share that CPARF’s 2025 Remarkable US Accelerator cohort kicks off this week! This program supports disability-focused startups that are developing cutting-edge assistive technology. Remarkable US brings life-changing ideas to market faster and ensures people with disabilities can access affordable new technology as soon as possible.   Meet the 2025 Cohort:    The […]

Wed 21 May 2025

Bold graphic promoting STEPtember 2025. The word “STEPtember” is displayed prominently in large, stylized text on a dark blue background. Below it reads “2025 Challenge is Coming Soon,” framed by green dotted arrow graphics pointing inward. The logo for the Cerebral Palsy Alliance Research Foundation is displayed in the bottom right corner on a bright teal strip.

Are you ready for STEPtember 2025? We’re officially in double digits — CPARF is celebrating 10 years of funding groundbreaking cerebral palsy research and driving innovation forward. And there’s no better way to mark this milestone than with our biggest, boldest STEPtember yet. Thanks to you, STEPtember has grown into a global movement that powers […]