Cerebral Palsy Alliance Research Foundation and the Cerebral Palsy Research Network Announce Formal Partnership

Thu 02 Feb 2023

Cerebral Palsy Alliance Research Foundation (CPARF) and the Cerebral Palsy Research Network have formally partnered to advance science to transform the lives of people with cerebral palsy.

As the world’s most common lifelong physical disability — and one of the most underfunded — cerebral palsy affects approximately one million people in the US. CPARF works to close critical gaps by amplifying cerebral palsy’s position in the research, technology, and care landscapes, chiefly within the US. The CP Research Network advances similar aims as the largest and most comprehensive network of hospitals and community members working together to improve health outcomes for people with cerebral palsy.

The partnership between CPARF and the CP Research Network will benefit all people with cerebral palsy, parents, caregivers, and medical professionals by ensuring that proven science makes its way into practice throughout the country sooner.

“This represents an exciting step forward for the entire cerebral palsy community,” said Paul Gross, the CP Research Network’s President and Chief Executive Officer. “We will be able to implement change more quickly and on a larger scale by investing more in our research infrastructure and expanding funding for the CP Research Network’s projects under development, allowing us to find the answers that people with cerebral palsy and their families seek.”

CPARF and the CP Research Network remain jointly dedicated to improving quality of life for people with cerebral palsy. “Individuals need and deserve to fully participate in society. Science, innovation, and implementation all play key roles in that,” shared Michael Pearlmutter, CPARF’s Executive Director. “Alongside our research, CPARF operates Remarkable US, a disability tech startup accelerator to advance cutting-edge technology to help people with cerebral palsy and other disabilities. Through this partnership, these startups will have access to esteemed institutions at the forefront of the disability space, facilitating crucial feedback and testing by people with lived experience, as well as clinical trials that will help get these products to market.”

As partners, CPARF and the CP Research Network will continue to work toward a crucial element of their missions: enhancing everyday life for people with cerebral palsy.

Researchers and community members can join leaders of both organizations to learn more about the partnership for a webinar on Monday, February 13, 2023, at 6:00 pm ET.  The webinar will also be recorded for later viewing. Registration is open at this link: https://bit.ly/CPResearchPartnershipWebinar

About Cerebral Palsy Alliance Research Foundation

Cerebral Palsy Alliance Research Foundation funds US-based research to change what’s possible for people with cerebral palsy, implements proven science, and advances innovation to benefit all people with disabilities. Learn more at cparf.org or contact info@cparf.org.

About the Cerebral Palsy Research Network
The Cerebral Palsy Research Network aims to optimize the lifelong health and wellness of people with cerebral palsy and their families through high-quality research, education, and community programming. Learn more at cprn.org or contact info@cprn.org.

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