CP & CVI: Expert Insights, Real Answers

Tue 18 Feb 2025

CP & CVI: Expert Insights, Real Answers – Join the Conversation!

Following the popular launch of our “CP &…” series, Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting our second joint event on Tuesday, March 25 at 5:30 pm ET. This event features professional experts in the field who will address community questions regarding CP and CVI. CPARF’s Vice President of Programs and Operations, Jocelyn Cohen, will moderate the panel, which includes:

  • Corinna Bauer, PhD, Director, Lab for Neuroimaging and Vision Science; Assistant Professor of Radiology at Massachusetts General Hospital
  • Rachel Bennett, CVI Parent and CVI Now’s Director
  • Karen Harpster, PhD, OTR/L, CVI and CP Expert; Assistant Professor, UC Department of Allied Health

About CVI and cerebral palsy: Many people with cerebral palsy (CP) also have Cerebral/Cortical Visual Impairment (CVI), with preliminary data showing they are three times more likely to have visual impairments, and up to 87% may experience CVI-related visual perception dysfunction. Additionally, 65% of children with CVI also have CP. Since vision is crucial for movement, visual impairment can significantly affect motor development, including sitting, crawling, and walking. Despite this, vision and visual perception are not routinely screened or evaluated as standard care for people with CP, and there is limited data on how vision is impacted in adults with CP.

Sign up and submit questions for our panel today!

 

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About Cerebral Alliance Research Foundation (CPARF):  

Cerebral Palsy Alliance Research Foundation (CPARF) funds US-based research to change what’s possible for people with cerebral palsy, implements proven science, empowers people through education, and advances technology benefiting all disabled people worldwide. Learn more at cparf.org. 

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Media Contact: Elizabeth Boyte, Director of Development, Cerebral Palsy Alliance Research Foundation, elizabeth.boyte@cparf.org; 646-503-1335

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Are you ready for STEPtember 2025? We’re officially in double digits — CPARF is celebrating 10 years of funding groundbreaking cerebral palsy research and driving innovation forward. And there’s no better way to mark this milestone than with our biggest, boldest STEPtember yet. Thanks to you, STEPtember has grown into a global movement that powers […]

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Illustration promoting birthday fundraisers for the Cerebral Palsy Alliance Research Foundation. The left side features a green box with the message “Celebrate Your Birthday with Purpose” and the CPARF logo. The background is a cheerful pattern of cakes, balloons, and presents. On the right, a photo shows a joyful group of people, including children and adults, throwing confetti around a birthday cake. The bottom of the photo reads “Happy Birthday!” in playful blue script.

Celebrate Your Birthday with Purpose: Start a Fundraiser That Changes Lives Birthdays are for joy, reflection, and connection — and now, they can help fund groundbreaking research, fuel innovation in assistive technology, and create lasting change for people with cerebral palsy and other disabilities. Celebrate your special day by starting a customized birthday fundraiser to […]