Episode Fifteen | Changing What’s Possible: The Disability Innovation Podcast | Season Three

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Fri 04 Oct 2024

Changing What’s Possible: The Disability Innovation Podcast | Season Three

The vast majority of people with cerebral palsy (CP) experience chronic pain throughout their life. Even though this pain is incredibly common, it’s often not adequately treated or managed in regular clinical care. Pain treatment delays can lead to more severe pain or other health problems later on. To improve how clinicians treat pain, it’s essential for them to regularly screen patients for pain, classify what type(s) of pain someone has, and measure changes in pain over time.

In this episode, Dr. Amy Bailes and Dr. Mary Gannotti discuss their ongoing CPARF-funded research focused on improving the quality of care for adults with cerebral palsy who experience pain. Amy is a physical therapist and Associate Professor in the Department of Allied Health at Cincinnati Children’s Hospital Medical Center and the University of Cincinnati. She is also Director of Quality improvement with the Cerebral Palsy Research Network. Mary is a physical therapist and Professor at the University of Hartford and performs clinical research with the Cerebral Palsy Research Network. She is also co-chair of the CP Research Network’s Adult Study Group.

 

View the transcript for Episode Fifteen.


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Check out previous episodes. New episodes are released every Friday. 

Fri 05 Dec 2025

A young child sits at an outdoor table in a garden, reaching toward vegetables and an ear of corn. Lush green plants fill the background. On the left side of the image is a dark overlay with the Cerebral Palsy Alliance Research Foundation logo and the text “Partnering with Tribal Voices to Lead Innovation – December 2025.” A small photo credit in the bottom right corner reads “Photo by Ask Grandma.”

An update on one of our most important initiatives: expanding access to life-changing assistive technology for Native Americans with disabilities.

Fri 10 Oct 2025

We’re thrilled to share an exciting milestone from CPARF’s Changemakers Program — our inaugural community-voted research study has been selected!