Episode Fifteen | Changing What’s Possible: The Disability Innovation Podcast | Season Three

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Fri 04 Oct 2024

Changing What’s Possible: The Disability Innovation Podcast | Season Three

The vast majority of people with cerebral palsy (CP) experience chronic pain throughout their life. Even though this pain is incredibly common, it’s often not adequately treated or managed in regular clinical care. Pain treatment delays can lead to more severe pain or other health problems later on. To improve how clinicians treat pain, it’s essential for them to regularly screen patients for pain, classify what type(s) of pain someone has, and measure changes in pain over time.

In this episode, Dr. Amy Bailes and Dr. Mary Gannotti discuss their ongoing CPARF-funded research focused on improving the quality of care for adults with cerebral palsy who experience pain. Amy is a physical therapist and Associate Professor in the Department of Allied Health at Cincinnati Children’s Hospital Medical Center and the University of Cincinnati. She is also Director of Quality improvement with the Cerebral Palsy Research Network. Mary is a physical therapist and Professor at the University of Hartford and performs clinical research with the Cerebral Palsy Research Network. She is also co-chair of the CP Research Network’s Adult Study Group.

 

View the transcript for Episode Fifteen.


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Check out previous episodes. New episodes are released every Friday. 

Wed 15 Apr 2026

Press release graphic: "CPARF Receives $100,000 Grant from Ability Central to Expand Access to Affordable Assistive Technology — For Immediate Release." Logos for Cerebral Palsy Alliance Research Foundation and Ability Central appear at the bottom.

CPARF Receives $100,000 Grant from Ability Central to Expand Access to Affordable Assistive Technology

Fri 10 Apr 2026

A smiling woman stands outdoors by a pond, holding a book titled “Trent’s Triumph Activity Book,” while standing behind her brother, who is seated in a wheelchair and laughing joyfully. They are on a sunlit path with trees and water in the background. Overlaid text reads: “The Unbreakable Bond: Celebrating National Siblings Day with Trent and Kalli” from the Cerebral Palsy Alliance Research Foundation.

National Siblings Day is about more than childhood memories — it’s about the people who show up, advocate, and push us to be our best.