Fri 28 Jul 2023


Earlier this year, we started a Keeping It Real Q&A series on Instagram stories to engage with our followers — people with cerebral palsy, parents and caregivers of people with cerebral palsy, and other disabled allies. Keep scrolling to learn more about collective experience that people with cerebral palsy and other disabilities shared in a recent Q&A.

What has cerebral palsy taught you?”

“CP has taught me to be resilient as well as adaptable in all aspects of my life, and it's nothing to be ashamed of. CP does not define me. I define it and what it means for me in my life.”

“To be disciplined in all that I do and never give up.” 

“That rest is a productive activity!”

"I love myself regardless of my CP. I would never let it define me as a person. I've grown to love my CP because it makes me different regardless of what people think.”

“Having CP since birth has taught me to be courageous, resilient, and to live and appreciate life to the fullest.”

Follow us on Instagram @researchforcp and keep an eye on our stories for our next Q&A during Disability Pride Month!

These responses are part of KEEPING IT REAL — a series of personal stories that will take you deeper into the lives of people with CP. Each person makes different choices based on what works for them, and we’ll showcase that — highlighting what life is like for them on a daily basis, what they care about, and the ways CP impacts them. 

The KEEPING IT REAL blog is intended solely to raise awareness about the varied human experience with cerebral palsy and shouldn't be read or construed to contain any medical advice or medical endorsement by Cerebral Palsy Alliance Research Foundation. Only you and your doctor know what's best for you. Please consult your doctor for medical advice.

Tue 16 Jul 2024

By Kim Greene Season of Confirmation With his affirmative comment and now wondering if indeed I had a neurological issue, I googled what I knew about my history. I knew that I had been adopted and born eight weeks early and had to be kept in the hospital until I was stable and weighed more […]

Wed 10 Jul 2024

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and […]