Keeping It Real: Karina and Aitana’s Story, Part 1

Tue 25 Jun 2024

By Aitana and Karina De Costa 

We recently connected with Aitana — a spunky nine-year-old girl with cerebral palsy — and her mom, Karina. They each shared their perspective with us, and it’s worth a read. Check out Aitana’s story below and stay tuned for Karina’s story soon.

Tell us about yourself. For example, how would your best friends describe you? 

Hi! My name is Aitana and I’m nine years old. My favorite color is blue. I’m a huge Taylor Swift and Harry Potter fan. I have cerebral palsy and it affects my legs and my left arm. My friends would describe me as a sweet, kind, and smart person. 

I feel that I have to work harder than other kids, and I have to be always mentally prepared to do things in life that I was not prepared for, like my upcoming surgery this summer. 

What are your hobbies? What do you love to do? What brings you joy? 

I love to draw and paint. I also collect different kinds of notebooks where I write stories or make some drawings. 

What do you wish other people knew about CP?

I wish people could understand that people with cerebral palsy could be heard and understand us a little bit more. It is very hard for us to do regular tasks because it requires more energy, but some of us can do it! With a bit more time and an extra push of motivation, time, and energy. 

What’s the most challenging part of having CP?

For me, the most difficult part is that I wish I could walk, run, or jump like the other kids. I only want to be able to walk, so I work really hard to keep improving. 

What CP research, if any, has shaped your life or perspective on your disability?

The gait analysis, that really helped define what kind of braces I should use, because the doctors were all having different opinions. 

What assistive tech, If any, has helped you live your life?

I would say my crocodile walker. With that, I’m able to run faster and have fun with it. 

Tue 16 Jul 2024

By Kim Greene Season of Confirmation With his affirmative comment and now wondering if indeed I had a neurological issue, I googled what I knew about my history. I knew that I had been adopted and born eight weeks early and had to be kept in the hospital until I was stable and weighed more […]

Wed 10 Jul 2024

A green background with black rectangle across the bottom. In the left are the colors of the disability pride flag to the right white text reads "Hosted by" the the CPARF and CVI logos. Above, text in dark grey reads: CP & CVI Now: A Community Discussion followed by July 25, 2024 from 5:30-6:30 pm ET.

Cerebral Palsy Alliance Research Foundation (CPARF) and CVI Now (part of the CVI Center at Perkins School for the Blind) are hosting a joint event on Thursday, July 25 from 5:30 pm to 6:30 pm ET. Launching CPARF’s new “CP &…” series, the event will dive deep into the connections between cerebral palsy (CP) and […]