Keeping It Real: Karina and Aitana’s Story, Part 1

By Aitana and Karina De Costa 

We recently connected with Aitana — a spunky nine-year-old girl with cerebral palsy — and her mom, Karina. They each shared their perspective with us, and it’s worth a read. Check out Aitana’s story below and stay tuned for Karina’s story soon.

Tell us about yourself. For example, how would your best friends describe you? 

Hi! My name is Aitana and I’m nine years old. My favorite color is blue. I’m a huge Taylor Swift and Harry Potter fan. I have cerebral palsy and it affects my legs and my left arm. My friends would describe me as a sweet, kind, and smart person. 

I feel that I have to work harder than other kids, and I have to be always mentally prepared to do things in life that I was not prepared for, like my upcoming surgery this summer. 

What are your hobbies? What do you love to do? What brings you joy? 

I love to draw and paint. I also collect different kinds of notebooks where I write stories or make some drawings. 

What do you wish other people knew about CP?

I wish people could understand that people with cerebral palsy could be heard and understand us a little bit more. It is very hard for us to do regular tasks because it requires more energy, but some of us can do it! With a bit more time and an extra push of motivation, time, and energy. 

What’s the most challenging part of having CP?

For me, the most difficult part is that I wish I could walk, run, or jump like the other kids. I only want to be able to walk, so I work really hard to keep improving. 

What CP research, if any, has shaped your life or perspective on your disability?

The gait analysis, that really helped define what kind of braces I should use, because the doctors were all having different opinions. 

What assistive tech, If any, has helped you live your life?

I would say my crocodile walker. With that, I’m able to run faster and have fun with it.